There are a few things in life that we can be absolutely sure of: death, taxes and change. Taxes are the price we pay to live in the Western World. There will always be someone we pay for protection and taxes are the legal form of extortion. Death is also something we have little control over. We can live a healthy, positive life style and still die young. On the other hand we can live life to the fullest, indulging in all kinds of hedonistic behaviors. Most people find a combination of the two to be optimal. Finally there is change. Times change, people change. Wouldn’t it be nice if some things could stay exactly the same.
MS is a disease of change. Honestly, no two days are exactly the same. It seems that I can have a really great couple of days and then everything goes wrong. My legs are weak, I can’t lift anything, a lousy night’s sleep, etc, etc, etc. it means that it is very difficult to make plans. I don’t know how I am going to feel in three days, or two months. What I can do is plan ahead. If I am going to have company on Friday then I start preparing a week in advance. Anything I have to make is done ahead and frozen. Yes, I also make lists and these ones I stick to. I will also make sure I am well rested for several days in advance. When people offer to help, I let them. The important thing is the company not how shiny the silverware is.
I don’t entertain the way I used to. I loved to cook and I could set a mean table. Now I concentrate on the friends who share a meal and some good conversation with me. I have nothing to prove to anyone and I am not Wonder Woman. Well maybe I am Bloody Wonderful Woman but I should be humble. Me, myself and I are having a good time.
Butterfly Sand 
You can let your disease control you. Or you can control you. You do a great job of overcoming your disease. MS sucks by the way.
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Truer words were never spoken! Thanks Pamela.
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Spoken from the heart. I admire you for being you, sharing here with your wisdom, your humour and wonderful stories. And that painting here …is that another one of your masterpieces? It is lovely
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Thank you for your words and also for being you! Yes the painting is mine, done last week.
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It is a lovely painting
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Thank you. I am working on a couple more right now.
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Reblogged this on Stop the Stigma and commented:
A beautiful testimony of compassion for life, friends and her love for creativity. We could gain much from her wisdom and generous nature…and chuckle with her humour as well. Check out her website, a beautiful mind…a beautiful person, Cheyr
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Cheryl what a lovely comment, thank you! I am honoured that you are reblogging this on your great site, thank you.
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It is I that should thank you for spreading such positive energy and I do love your art work. Have you had a vernissage yet? Let me know if and when you do and I will let my aunt know in Oakville.
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I have no plans for an exhibition. I enjoy painting but I honestly don’t think they’re good enough. Maybe one day.
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Thank you for sharing your story. I have some of the same issues. One day at a time and know you are never alone. Hugs, Barbara
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Thank you so much for the comment Barbara. You are right: we are never alone.
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