Monthly Archives: March 2015

100 Miles

Feb 22 2014 027


Reading another’s blog about his childhood made me nostalgic for my own. Here is another glimpse back to those halcyon days.

My parents and I once took a month long vacation took while we were living in Saint John, New Brunswick, Canada.  I was probably 9 or 10. We packed the car and started out okay until we hit a particular section of highway that is 100 miles long with nothing but trees the entire way. It was a two lane highway so some passing of vehicles was required.  It was also popular with trailers which of course drive slower then most cars.  We had successfully passed several of these vehicles when we encountered a problem just as we came alongside one of these trailers. No acceleration. Fortunately my father had just enough power to finish passing and pull over on to the shoulder. A kind soul passing by stopped and between him and my father they determined that the accelerator cable had broken.  This stranger promised to stop at the next town and send back a tow truck.   We made ourselves comfortable.  Soon another stranger going in the opposite direction stopped to say that there was no tow truck so he would stop at the previous town and try to send one back from there. Eventually the same news came back: no tow truck available. Never one to admit defeat my father was able to rig up a solution.  A trusty coat hanger attached to the accelerator was threaded under the hood of the car to the driver’s side window became a makeshift solution.  My father wrapped socks around the coat hanger and pulled on it to accelerate.  Sounds good, with a few caveats.  It was hilly terrain so the car had to go at least 100 mph downhill to get up the next hell.  My mother sat close to my father so she could jam the gear shift into neutral if necessary.  It was a very long run to the next town I must say. When we did finally make it, the local mechanic was amazed by the ingenuity but didn’t have a replacement cable.  He did however rig the coat hanger through the floor board so it was much easier the next day.  It was replaced later.

Happily Ever After


Happily ever after

is the end of every tale

but something must come next you see

the hero must not fail

Happily ever after

is not the title now

wrinkle cream and balding heads

reality takes a bow

Happily ever after

are the words we want to read

and yet this chapter’s still not written

we want another deed

Happily ever after

there are things we should not know

as long as they are happy now

the joy on each bestow

Happily ever after

can end this silly jaunt

he and she can still go forth

the next could be a haunt

It is not true!



Now those of you who follow my blog know that I have multiple sclerosis.  It is part of my life but it is not my life.  MS is a life sentence not a death sentence and yet characters on TV would have you believe otherwise. Even the media has a difficult time portraying this disease in anything but a negative light. I am here to tell you it ain’t so!

I have a good life.  I have friends, I paint, I write, I socialize. I also live my life in a wheelchair.  I cannot stand.  I need help getting into and out of bed.  And yet my life is not a negative one. I do not despair of the things I cannot do.  I concentrate on the things I can do.  And I do them well.

When friends see articles about MS they believe what they hear, why wouldn’t they? I spend way too much time in damage control.  That annoys me . . . a lot! People who are recently diagnosed are also put in jeopardy.  One of the worst things to deal with when you have MS is stress. Portraying people with MS as damaged goods or worse as terminal is a travesty.  For what?

We all know that TV is in the business of telling stories.  Veracity is optional. I would like to believe the media strives for accuracy but they often fall very short when dealing with chronic diseases.  There is no reason for it.

Multiple Sclerosis is a disease of uncertainty. Every day can be different and every person deals with it in their own way. Please don’t make things worse. Life is for living even with an itty, bitty incurable disease.