Now those of you who follow my blog know that I have multiple sclerosis. It is part of my life but it is not my life. MS is a life sentence not a death sentence and yet characters on TV would have you believe otherwise. Even the media has a difficult time portraying this disease in anything but a negative light. I am here to tell you it ain’t so!
I have a good life. I have friends, I paint, I write, I socialize. I also live my life in a wheelchair. I cannot stand. I need help getting into and out of bed. And yet my life is not a negative one. I do not despair of the things I cannot do. I concentrate on the things I can do. And I do them well.
When friends see articles about MS they believe what they hear, why wouldn’t they? I spend way too much time in damage control. That annoys me . . . a lot! People who are recently diagnosed are also put in jeopardy. One of the worst things to deal with when you have MS is stress. Portraying people with MS as damaged goods or worse as terminal is a travesty. For what?
We all know that TV is in the business of telling stories. Veracity is optional. I would like to believe the media strives for accuracy but they often fall very short when dealing with chronic diseases. There is no reason for it.
Multiple Sclerosis is a disease of uncertainty. Every day can be different and every person deals with it in their own way. Please don’t make things worse. Life is for living even with an itty, bitty incurable disease.