It is not true!

WHEELCHAIR 4

 

Now those of you who follow my blog know that I have multiple sclerosis.  It is part of my life but it is not my life.  MS is a life sentence not a death sentence and yet characters on TV would have you believe otherwise. Even the media has a difficult time portraying this disease in anything but a negative light. I am here to tell you it ain’t so!

I have a good life.  I have friends, I paint, I write, I socialize. I also live my life in a wheelchair.  I cannot stand.  I need help getting into and out of bed.  And yet my life is not a negative one. I do not despair of the things I cannot do.  I concentrate on the things I can do.  And I do them well.

When friends see articles about MS they believe what they hear, why wouldn’t they? I spend way too much time in damage control.  That annoys me . . . a lot! People who are recently diagnosed are also put in jeopardy.  One of the worst things to deal with when you have MS is stress. Portraying people with MS as damaged goods or worse as terminal is a travesty.  For what?

We all know that TV is in the business of telling stories.  Veracity is optional. I would like to believe the media strives for accuracy but they often fall very short when dealing with chronic diseases.  There is no reason for it.

Multiple Sclerosis is a disease of uncertainty. Every day can be different and every person deals with it in their own way. Please don’t make things worse. Life is for living even with an itty, bitty incurable disease.

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26 thoughts on “It is not true!

  1. Pamela Beckford

    So well stated. I remember when I was diagnosed my doctor being very honest with me and saying ‘if you have to have a chronic disease, this one is pretty good because it doesn’t kill you.’ No matter the exacerbation, I will always remember that. Those high profile cases are bad for us all.

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  2. emilievardaman

    I ran into a former student of mine a few years ago. She was in her mid thirties and told me she had just been diagnosed with MS. I hugged her long and hard and told her I was sorry but that with an early diagnosis I knew she would find a way to live with the disease. I also reminded her what a strong a determined woman she was and that I knew she could learn a new and exciting life.
    Interestingly, in just the last few months, three friends of mine have been diagnosed with Parkinson’s. After many years of knowing only one person with this, I now have three more good friends with it.
    Life holds so much for us. Not all is good, but as you and I know, we can run with something negative and either turn it around or at least turn it sideways!

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  3. Jill Dunbar

    Pam – you are one incredible lady! “Itty bitty incurable disease”….. I think it is alot more than that and you handle it with such grace…..Is it any wonder that you are loved so much by so many?

    Have a wonderful and blessed day, my friend. XO

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  4. Sunshine Jansen

    I was just at a funeral for someone who died from leukemia, and there I saw an old colleague I hadn’t seen since before the diagnosis. She asked about the stick and I told her I’d had MS for the last 7 years; she didn’t hear me at first so I had to repeat myself, and was shocked at the way her eyes widened with pity and she clasped my arm and said “I am so sorry!” Now, my friend who’d just passed had the Devil’s own sense of humor, so I know he would’ve appreciated it when I shrugged and nodded at his coffin. “Could be worse!” I said. 🙂 Those are my guiding words these days. Great post!

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  5. scottishmomus

    It seems the only news worth spreading nowadays is one of fear. Thank god we don’t have to believe everything we read in the papers. Keep telling it like it is, Pam. It must take strength and a positive attitude to deal with MS as with so many things in life. And you’re just the lady to do that.x

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