Tag Archives: dealing with MS

I Know It


I know what’s being said

from the readings that I’ve read

that the life we live is tough

and the living of it rough


But here’s the thing I’ve learned

that the life you have you earned

and joy you get from living it

is the work that you’ve put into it


So raise a glass of cheer

for the moment you are here

cuz you know it won’t be long

before this moment here its gone

MS isn’t for wimps . . .

Depression, the killer of lost souls. Have you ever felt so lost, so alone in a crowded room that you begin to question the reasons.  The reason we are here, the reason we feel so deeply, the reason people see the world in so many different ways.   Why am I here, why do I live while others die, why I am dealing with this damn disease?  The answer is very simple and not very popular:  why not?  As for the reason . . . who said reason was a part of living.  Reasons are the excuses we give ourselves so we can do what we want while still feeling sanctimonious.   Don’t kid yourself.  Mankind is a predator.  We take what we want and make excuses, laws, beliefs to accommodate the moment.  The questions of faith would best be left to saints and madmen, madwomen, mad people, oh whatever! Each one of us has moments of madness and saintliness. The trick is knowing the difference. 

I was recently asked how I deal with depression.  Why is it always assumed that we must be depressed if things aren’t perfect?   Just because I am dealing with a disease that has robbed me of the ability to walk, for which there is no cure, that limits my independence, why must I be depressed?  Hum-mm. When you put it that way, maybe I should be.   But I’m not.   Oh don’t get me wrong, I do have days when I feel really crummy, when I am a wee bit depressed but I am not dealing with DEPRESSION.  I have enough to deal with why would I complicate it with depression?  Having MS has taught me tolerance, it has taught me patience (still a work in progress) and it has taught me to ‘deal with it and move on’.  Every single person has something, some hurdle they have to contend with – fear of heights, fear of flying, allergies, migraines, the list goes on.  Mine is perhaps more frightening, more high profile. But my personal hurdle is no more difficult than another person’s.  Because whatever you are dealing with is always worse when it is yours.