Tag Archives: legacy

What do you want?

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What do you want out of life? Do you want to be successful, a star, rich? Do you want to be remembered as someone that invented something or was the most despicable criminal who ever lived? I think the fact that you are remembered at all speaks to your worth. My parents are gone but they are still remembered as good people. I think that’s pretty incredible!

Immortality is a concept that we banter about but do you really want to live forever? I don’t. Too many things would have to change for me to want to be around that long. I would want to be younger, thinner, taller the list could be become quite long. I don’t necessarily want to be remembered for having made a difference rather I want to make the difference. I don’t care if I’m remembered after I’m dead I want to be remembered now when I’m around to enjoy it.

We get so caught up in what we believe our legacy will be that we forget to fulfill that legacy. One day I will be dust, hopefully not snorted up somebody’s nose. Isn’t that what you would like? To make a difference, not to be snorted. We can make a difference right here, right now this very second. Be kind to a stranger. Smile at a child. Perhaps that kindness we’ll inspire that person to be kind to someone else and so the snowball begins. Don’t wait for someone else to start a movement so that you can join in. You can be the vanguard. It doesn’t cost any money, it isn’t painful or even difficult. Smile. Pass it on!

ODE TO THE UNBORN CHILD

 

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TO YOU LITTLE ONE

WE LEAVE THIS WORLD

IMPERFECT IT IS

BUT HOPELESS IT’S NOT.

YOU ARE THE FUTURE

THE BRIGHT LIGHT OF HOPE.

MAY YOUR EYES BE WIDE

WITH WONDER

THAT YOU NEVER LOSE.

MAY YOUR HEART BE OPEN

AND FORGIVING.

WE WANTED IT ALL

FOR OURSELVES AND FOR YOU.

WE WERE WRONG.

WITH TIME, PERHAPS,

YOU CAN BETTER THIS WORLD.

OUR LEGACY TO YOU.

MAY YOUR SMILE

NEVER DARKEN

AND TEARS BE ONLY OF JOY.

YOU ARE SO TINY,

NOT YET OF THIS WORLD,

BUT STILL YOU ARE HERE

YOUR PRESENCE IS FELT.

ONE DAY THIS WORLD WILL BE YOURS,

TREAT IT WITH CARE.

BE A PARTNER

AND REACH FOR THE STARS.

YOU CAN BE

ALL THAT YOU WILL

THE POWER IS YOURS.

TO YOU LITTLE ONE

I SALUTE

AND AWAIT YOUR ARRIVAL

HALE AND HEARTY.

 

 

 

30 DECEMBER 1990

The Battleground

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I do not considered myself to being doing battle with MS anymore than I think of my body as a battleground between healthy and diseased. “In this corner we have ‘Healthy Hannah’ battling the evil ‘Diseased Kid’! Nhat! I am right handed, I am a red-head with highlights of ash blond (gray).  I like popcorn and red wine (not together).  I also have multiple sclerosis. I do not spend my days bemoaning the fact that I have an itty, bitty, incurable disease.  I do not spend my days worrying about the fact that my hair is turning gray (ash blond thank you very much).  The fact that I have a disability is rather hard to hide.  I am in a wheelchair.  But this also does not occupy my thoughts.  Do you spend the entire day worrying about your choice of shoes that morning? I am fully aware of my limitations just as you are aware of yours.  There are certain concessions that have to be made because I am in a wheelchair just as you might make concessions due to an allergy to peanuts.

I try to live each day to the fullest because I am a vibrant, incredibly cute, mildly funny, individual.  Period.  Not because I have a disability or because I have to prove something to the rest of the world.  The rest of the world can do whatever it wants (within reason). I am responsible only for myself.  I wish to live a full life and I am endeavoring to do so.

I am beginning to understand that the way I see the world is perhaps not that common.  I watched a program about someone with MS who is going blind and has difficulty walking.  He spoke about his battles with this ‘debilitating’ disease. He is a successful man with a wonderful wife and several beautiful children.  He does not appear to be in financial difficulties.  To the outside world he looks to be in good shape.  I do not doubt for a second that in his world he is indeed doing ‘battle’ with an evil foe.  I simply see the picture a little differently.  Yes I have missed out a few things I had hoped to have in my life: husband, children, career, but I do have something that is invaluable to me: myself. I am in a good place in my life and I believe I will make a difference to others in my own way, in my own time.  That I think is what I want my legacy to be: ‘she made a difference’.  Not yet of course, I have 50 or so years to go before I want any legacy talk!